The temporary solution, which most patients go through, is regular monthly blood transfusions. However it costs 5-10K Taka/month, which is expensive for a lot of families in Bangladesh. To support their costs, I have been working on a project in which families can work on an outsource micro-it jobs in order to support their monthly blood transfusion costs.
We also need to work towards building a hospital that can perform cost-effective bone marrow transformations in Bangladesh.
And thirdly, we need to research on finding a breakthrough cure for this genetic disease possibly by nanotechnology, which seems very promising.
Please see the links below for more details of the three aspects of this project.